Newborn Bloodspot Screening Advisory Board; members; term; meetings; reports.

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(2) The board consists of 13 voting members appointed by the Director of the Oregon Health Authority as follows:

(a) One member who is a person affected by a disorder included in the newborn screening panel or a family member of a person affected by a disorder included in the newborn screening panel;

(b) One member who is a licensed physician who by contract provides expert medical advice and consulting services to the Northwest Regional Newborn Bloodspot Screening Program;

(c) One member who is a representative of Medicaid or the insurance industry;

(d) Two members who are representatives of birthing centers or hospitals;

(e) One member who is a representative of an entity that contracts with the Northwest Regional Newborn Bloodspot Screening Program for newborn bloodspot screening services;

(f) Three members who are representatives of advocacy associations regarding newborns with medical conditions or rare disorders;

(g) One member who is a representative of a statewide association of nurses;

(h) One member who is a representative of a statewide association of midwives; and

(i) Two members who are representatives of a statewide association of pediatricians.

(3) In addition the requirements provided in subsection (2) of this section, one or more of the following professions must be represented as a voting member of the board:

(a) Neonatal intensive care specialist;

(b) Licensed physician or nurse practitioner who is board certified in obstetrics, pediatrics or neonatology;

(c) Obstetrician or gynecologist;

(d) Nurse;

(e) Ethicist;

(f) Geneticist;

(g) Dietician; and

(h) Educator.

(4) To the greatest extent practicable, the director shall appoint members from a diverse range of socioeconomic, racial and ethnic backgrounds.

(5) In addition to the 13 voting members provided for in subsection (2) of this section, members of the Legislative Assembly or employees of the Oregon Health Authority may serve as nonvoting members.

(6) The term of office of each voting member of the board is four years, but a member serves at the pleasure of the director. Before the expiration of the term of a member, the director shall appoint a successor whose term begins on July 1 next following. A member is eligible for reappointment. If there is a vacancy for any cause, the director shall make an appointment to become immediately effective for the unexpired term.

(7) A voting member of the board is entitled to compensation and expenses as provided in ORS 292.495.

(8) The board shall select two of its members to jointly serve as chairpersons and another as vice chairperson, for terms and with duties and powers necessary for the performance of the functions of the offices as the board determines. One chairperson must be a voting member and the other chairperson must be the manager of the Northwest Regional Newborn Bloodspot Screening Program or the manager’s designee. The manager or manager’s designee must be a nonvoting member.

(9) A majority of the voting members of the board constitutes a quorum for the transaction of business.

(10) The board shall meet at least once every six months at a time and place determined by the board. The board also may meet at other times and places specified by the call of one or both chairpersons or of a majority of the voting members of the board.

(11) The board shall report its findings and recommendations for legislative changes to the committees or interim committees of the Legislative Assembly related to health in the manner provided under ORS 192.245 no later than September 15 of each even-numbered year. [2019 c.109 §1]

Note: 433.299 was enacted into law by the Legislative Assembly but was not added to or made a part of ORS chapter 433 or any series therein by legislative action. See Preface to Oregon Revised Statutes for further explanation.


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