Cystic Fibrosis Research and Education Fund.

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§ 97-qqqq. Cystic fibrosis research and education fund. 1. There is hereby established in the joint custody of the commissioner of taxation and finance and the comptroller a fund to be known as the "cystic fibrosis research and education fund". 2. Such fund shall consist of all revenues received pursuant to section four hundred four-bb of the vehicle and traffic law, and all other moneys appropriated, credited or transferred thereto from any other fund or source pursuant to law. Nothing contained in this section shall prevent the state from receiving grants, gifts or bequests for the purposes of the fund as defined in this section and depositing them into the fund according to law. 2-a. On or before the first day of February each year, the comptroller shall certify to the governor, temporary president of the senate, speaker of the assembly, chair of the senate finance committee and chair of the assembly ways and means committee, the amount of money deposited in the cystic fibrosis research and education fund during the preceding calendar year as the result of revenue derived pursuant to section four hundred four-bb of the vehicle and traffic law and from grants, gifts and bequests. 2-b. On or before the first day of February each year, the commissioner of health shall provide a written report to the temporary president of the senate, speaker of the assembly, chair of the senate finance committee, chair of the assembly ways and means committee, chair of the senate committee on health, chair of the assembly health committee, the state comptroller and the public. Such report shall include how the monies of the fund were utilized during the preceding calendar year, and shall include:

(i) the amount of money disbursed from the fund and the award process used for such disbursements;

(ii) recipients of awards from the fund;

(iii) the amount awarded to each;

(iv) the purposes for which such awards were granted; and

(v) a summary financial plan for such moneys which shall include estimates of all receipts and all disbursements for the current and succeeding fiscal years, along with the actual results from the prior fiscal year. 3. Moneys of the fund shall be expended only for cystic fibrosis research projects and cystic fibrosis education projects approved by the department of health in New York state. As used in this section, the term "cystic fibrosis research project" means scientific research approved by the department of health into the causes and/or treatment of cystic fibrosis, and the term "cystic fibrosis education project" means a project approved by the department of health aimed toward educating the general public about the causes, symptoms, and treatment of cystic fibrosis. 4. Moneys shall be payable from the fund on the audit and warrant of the comptroller on vouchers approved and certified by the commissioner of health. 5. To the extent practicable, the commissioner of health shall ensure that all moneys received during a fiscal year are expended prior to the end of that fiscal year.


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