The State Board of Health shall by regulation:
1. Prescribe the form and manner in which information on cases of sickle cell disease and its variants must be reported;
2. Prescribe the information that must be included in each report, which must include, without limitation:
(a) The name, address, age and ethnicity of the patient;
(b) The variant of sickle cell disease with which the person has been diagnosed;
(c) The method of treatment, including, without limitation, any opioid prescribed for the patient and whether the patient has adequate access to that opioid;
(d) Any other diseases from which the patient suffers, including, without limitation, pneumonia, asthma and gall bladder disease;
(e) Information concerning the usage of and access to health care services by the patient; and
(f) If a patient diagnosed with sickle cell disease and its variants dies, his or her age at death; and
3. Establish a protocol for allowing appropriate access to and preserving the confidentiality of the records of patients needed for research into sickle cell disease and its variants.
(Added to NRS by 2019, 2159)