RS 1073.2 - Velocardiofacial syndrome and 22q11.2 deletion syndrome; dissemination of information; rulemaking authority; costs
A. The department shall make available materials regarding velocardiofacial syndrome and 22q11.2 deletion syndrome to each early intervention services provider in this state.
B. Each early intervention services provider may offer the materials to parents of a child who is known by the provider to have at least two of the following conditions:
(1) Hypotonicity.
(2) Communication delay.
(3) Articulation disorder.
(4) Resonance disorder.
(5) Nasal regurgitation during feeding as an infant with no history of a cleft palate.
(6) Recurrent ear infections as well as diagnosis of cardiac anomaly, feeding disorder, cleft palate, or submucosal cleft palate.
(7) Fine motor or gross motor skills delay.
C.(1) The department shall develop the materials required pursuant to this Section using medically accurate, peer-reviewed literature.
(2) The materials made available by the department pursuant to this Section shall include, at a minimum, all of the following:
(a) An explanation of velocardiofacial syndrome and 22q11.2 deletion syndrome symptoms, diagnosis, and treatment options.
(b) Information on relevant state agency and nonprofit resources, parent support groups, and available Medicaid waiver programs.
(c) A recommendation for follow-up with a healthcare provider for evaluation of the underlying etiology and an explanation that the existence of any of the conditions listed in Subsection B of this Section will not necessarily result in a diagnosis of velocardiofacial syndrome or 22q11.2 deletion syndrome.
D. The department may adopt, in accordance with the Administrative Procedure Act, any rules and regulations necessary to implement this Section.
E. In developing the materials required by this Section, the department may utilize any available resources for the purposes of minimizing costs to the department.
Acts 2014, No. 72, §1; Redesignated from R.S. 40:1300.382 by HCR 84 of 2015 R.S.