Sec. 10. (a) Before July 1, 2019, and on a biennial basis thereafter, the state department, with the assistance of:
(1) the Indiana minority health coalition;
(2) health care providers that treat individuals with sickle cell disease;
(3) individuals diagnosed with sickle cell disease; and
(4) representatives of community based organizations that serve individuals with sickle cell disease;
shall perform a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and sickle cell trait in Indiana.
(b) The study must include the following:
(1) The prevalence, by geographic location, of individuals diagnosed with sickle cell disease in Indiana.
(2) The prevalence, by geographic location, of individuals diagnosed as sickle cell trait carriers in Indiana.
(3) The availability and affordability of screening services in Indiana for sickle cell trait.
(4) The location and capacity of the following for the treatment of sickle cell disease and sickle cell trait carriers:
(A) Treatment centers.
(B) Clinics.
(C) Community based social service organizations.
(D) Medical specialists.
(5) The unmet medical, psychological, and social needs encountered by individuals in Indiana with sickle cell disease.
(6) The underserved areas of Indiana for the treatment of sickle cell disease.
(7) Recommendations for actions to address any shortcomings in Indiana identified under this section.
(c) The state department shall transmit a study performed under this section in an electronic format under IC 5-14-6 to the general assembly.
As added by P.L.55-2019, SEC.4.